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Mancelona boy celebrates World Rare Disease Day

Daniel Grimes III was a movie star for a night when his short film debuted at
a Mancelona church, celebrating World Rare Disease Day.

ANTRIM COUNTY, Mich., (WPBN/WGTU) -- World Rare Disease Day was February 28th, but a Mancelona church hosted a belated celebration on Saturday night.


Daniel Grimes III lives in Mancelona and is turning 10 years old at the end of March. He is diagnosed with Hunter Syndrome, a rare genetic disease that affects Daniel's joints, organs and even his hearing.

To celebrate this year's World Rare Disease Day, his mom, Carolyn, got the idea from one of her Facebook friends to create a movie asking Daniel questions about his life with the disease and educating others in the process.

"The event was about letting him see physically just how many people do support him," Carolyn said. "There are this many people that do care about it. It just means the world."

After 90 minutes of filming and about a day of Carolyn editing, the movie premiered on Saturday night at Pathway Community.

Daniel was surprised when a Mancelona Fire Department truck arrived at his home to chauffeur him and his family to the premier.

Dozens cheered on Daniel and his family as they entered the premier on a red carpet.

The short flick that Daniel, his sister, Susan, and his mother made can be seen here.

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